Spreading omphalocele awareness on the second annual omphalocele awareness day... Our journey in a nutshell. On sept 17 2012 Andy and I had our second ultrasound to confirm the gender of our child. We were thrilled to find that his heart was beating and that yes, he was a boy. We officially picked his name in the waiting room. Then we were called back for our doctors appointment, where we were gently informed that while yes our child was a boy, and yes he has a healthy heartbeat, that there were some major problems. He had a giant abdominal wall defect know as an omphalocele. Complications with coexisting diagnoses (cardiac problems, mental deficiencies, syndromes that would be incompatible with life) were likely. An amnio was recommended. We declined. We already loved our baby too much to risk the 1-2% chance of miscarriage when we had already hit the jackpot with something whose odds were 1 in 10,000. Termination was not an option. We would love whatever God gave us. Graciously, in spite of the statistical probability of further complications, God saw fit to give us none. Hayden made it to just shy of 37 weeks gestation and was delivered Into the care of one of the nations greatest medical teams at STL CHILDRENS. Hayden spent a month recovering in the NICU, then came home to our care, with Pts, ots, and home health professionals filtering in and out for several months. Long story short, after 6 months, hayden was surgically repaired. Complications arose again, but again, God graciously provided us with an amazing outcome and a little boy whose determination and will to thrive had him all caught up developmentally well before his first birthday. We are blessed by the St. Louis medical team, our church family, a faithful God, and the insights and experiences of those MOOS (mothers of omphaloceles) GOOS, and DOOS that had gone before.
Posted on: Sat, 01 Feb 2014 02:42:31 +0000
Trending Topics
Recently Viewed Topics
© 2015