Thank you Brendan Sullivan and Scott Bateson for the nomination to do the #strikeoutals ice bucket challenge. Before you watch my video please read these facts about ALS: It is estimated that ALS is responsible for nearly two deaths per hundred thousand population annually. Approximately 5,600 people in the U.S. are diagnosed with ALS each year. The incidence of ALS is two per 100,000 people, and it is estimated that as many as 30,000 Americans may have the disease at any given time. Although the life expectancy of an ALS patient averages about two to five years from the time of diagnosis, this disease is variable and many people live with quality for five years and more. More than half of all patients live more than three years after diagnosis. About twenty percent of people with ALS live five years or more and up to ten percent will survive more than ten years and five percent will live 20 years. There are people in whom ALS has stopped progressing and a small number of people in whom the symptoms of ALS reversed. ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries. ALS can strike anyone. The onset of ALS is insidious with muscle weakness or stiffness as early symptoms. Progression of weakness, wasting and paralysis of the muscles of the limbs and trunk as well as those that control vital functions such as speech, swallowing and later breathing generally follows. There can be significant costs for medical care, equipment and home health caregiving later in the disease. It is important to be knowledgeable about your health plan coverage and other programs for which your may be eligible, including SSA, Medicare, Medical and Veteran Affairs benefits. I nominate Samuel Hopperstad, Rachel Walsh, Kaitlyn Morse and Adam Morse. You have 24 hours or you have to donate $100 at Alsa.org/donate
Posted on: Sat, 09 Aug 2014 18:59:58 +0000
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