Thank you all for your prayers and encouragement. All the comments are read, even if we do not have time to respond. Many of you have sent messages or posted comments with medical suggestions for Lilys care. Please be assured that Lilys care team is aware of any and every possibility that could be responsible for Lilys neurological symptoms (like medication side effects, drug interactions, brain trauma, seizures, etc etc etc), and they are researching every possible option to provide her with the best care they can. They are excellent and capable and Emily and Jacques have full confidence in them. Thank you all for your concern...know she is in good hands. update: Lily is still having episodes, though the increased Versed has been a big help since this morning. She will be going down for an MRI tomorrow afternoon and the cardiology and neurology teams will be meeting with Emily tomorrow morning to discuss options and what could be going on. She will continue to be monitored for seizure activity with the EEG...good news is that she has had no seizures since 8:15 this morning. Emily and I have had way too much coffee today, and thankfully have been able to find several moments of laughter, despite the stress of the day. Thank you for your prayers and your patience with the updates...we want to be certain we have accurate information to share before posting. Pray that Lily would get rest and relief tonight. Eucharisteo.
Posted on: Wed, 20 Aug 2014 00:01:07 +0000
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