The Kelly Fund for Lupus, Inc. Is grateful to all who share here. We fundraise for research. We educate especially in minority communities most affected by this disease and where people talk about it the least. Its so important to TALK ABOUT LUPUS so everyone understands 1)each person is different in method of diagnosis and symptoms with the disease. 2)mostly women have it but men get it too. 3)even children have Lupus. 4)feeling great at 8am could mean a rash at 9am, sniffles by 11, a headache at noon and hospitalization by 3 that lasts for a week. Common? Of course not. But thats how unpredictable Lupus can be. And can you imagine how it feels to be the person who doesnt know from day to day how your body will react. You have no control over it. You have no normal. The last thing you need is suggestions or positive phrases when people with Lupus feed themselves with those constantly just to keep going. Lupus patients need what we all do. A good listener. A real friend. Support. Help without asking. Someone who tries to read and understand what Lupus is and helps us find a cure.
Posted on: Tue, 26 Aug 2014 09:40:20 +0000
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