This RSDers comment from today is so inspiring. She is an advocate for herself, searching for answers and will not let obstacles stand in her way. She sees a better life, less pain, and is fighting today for that tomorrow: Cammie posted: I talked to my PT today about the Ketamine Compound cream and will be talking with Neurologist on Monday about infusions and oral k. I also have Epilepsy, so I have to clear all treatments with all providers before proceeding. Too many things could go wrong if they are not all on same page. I am honestly feeling hopeful... Thank you again so much for sharing everyone. Although the providers can not all expedite treatment as I would prefer, I am being relentless about my questions and goals for treatment. I have seen stories of people going years, decades without a confirmed dx, without treatment due to lack of knowledge of RSD by providers. I believe I am becoming quite the pain in the ass for some providers, but if I dont ask or dont pursue what is out there; I doubt some would think out of the box and help me. One provider didnt know it could spread, but claims extensive knowledge of RSD; red flag on that one: ( I am learning more and more each day and appreciate each and everyone one of you helping me in my pursuit of healing/relief.
Posted on: Fri, 03 Oct 2014 04:18:19 +0000
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