This group was formed 10 months ago. Within the last few month we have grown to 87 members from not just Australia but all over the world. Within the group we have SJS Survivors, SJS Family supporters, Carers, Friends, Long Term Survivors Worldwide. When a question needs answering or just the support of a comparison of a feeling you are having, a side effect or follow up treatment required. This group has become invaluable to our SJS Survivors. In saying that all our members are as important to us, however, I am now losing track of SJS Survivors within Australia. This information is helpful for me to put Survivors from each State in contact with one another if they need extra support ie finding a specialist or just knowing how close another Survivor is to the other. So Aussie SJS Survivors - As we are so far away from the rest of the world Please if you can Let me know who you are Aussie State in which you live Date of Diagnosis Hospital Treated Private Message me you Address details for my database. With much Appreciation to all our Members SJS Awareness Month Thank you for all your support... We have a very Supportive Group
Posted on: Fri, 29 Aug 2014 06:20:10 +0000
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