This is a little long, but I wish my healthy friends will take the time to read it and I know my sick friends will get it In the authors case, she has Lupus. A terribly debilitating disease that many misunderstand. I watched my step mother battle it, so I get it. This is a good story to (try to) explain how some of us live every day. To put things in perspective for me. Since having Kyle in July, Im starting my day out with a max of about 3 or 4 spoons. I literally have to choose between making dinner, and taking a shower. Between playing with the kids for a while, or giving one of them a bath. They dont get baths on the same day, unless someone helps me. I dont take a shower on a day I bathed one of the kids. its too much for me. If I have to go out for a Doc appt, or I dare go out for a short social function, that takes all my spoons for the day. I know that its hard to think of me being like this. Im not lazy, never have been. Ive always been a hard worker, worked full time and part time also. Worked all day and still could do something fun after work. I enjoyed seeing my family and friends. Now I only see someone if they come to me. I leave the house a couple of times a month. Im not trying to make anyone feel sorry for me. Please dont think I am. I am just trying to explain exactly what some others in your life may be going through. I could never have imagined being this way. In addition to not having the energy to get through the day, I have to wonder if I will make it through the day at all. I try not to dwell on it, but a heart function of 15% can lead to sudden, catastrophic, irreversible damage, any time, any day. I have not improved since being diagnosed, and may never improve. That depresses me. Ill take my turn at being sick, but the thought of staying this way sucks !
Posted on: Sat, 22 Mar 2014 23:45:17 +0000
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