Today marks Day 2 of the 79 Days of Duchenne, and I want to really thank Koli Cutler for making such an impressive and heartfelt video....and he didnt even have to say a word. :) Most of you Duchenne is an extremely destructive disease, as it deteriorates the muscle far to quickly. Any family shudders when their son is diagnosed with Duchenne, especially since there is not yet a cure. Can you imagine your son being diagnosed with Duchnene and being born deaf? I dedicate this video to Kyle Cox, because he has Duchenne and is deaf - and through that all, he has a spirit that lights up a room. A few weeks ago, I met Kyle for the first time, and I am honored to know him and to be his friend. Hope you like the video Kyle. Please friends SHARE this video and ask others to share it too. We must fight together so a cure can happen faster for my brother, Kyle and everyone else with this terrible disease. Together, we CAN Cure Duchenne! https://youtube/watch?v=LCeAKU96G_c
Posted on: Thu, 10 Jul 2014 14:06:48 +0000
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