Today – September 19th, 2013, at 2:00 pm to 3:00 pm Eastern Standard Time. There is a Webinar today Program #4 of the Narcolepsy Live Webinars… The speakers include Monica Gow, Julie Flygare and Kim McCleary… Here is a description of what this week’s webinar will include from the “Unite Narcolepsy” website! “ Our coaching team will help people planning to participate in the Sept. 24 FDA meeting to be prepared for the format and ways they’ll be invited to contribute their perspectives. We’ll review the format and the purpose for the meeting and ways FDA staff will help elicit the similarities and important differences among patients.“ Here is a link you can go to, to register today prior to the webinar… Registration Link – https://attendee.gotowebinar/register/2906509862698928640 If you happen to miss today’s live webinar, they do record them and post them you YouTube afterwards and will usually be up the morning afterwards on YouTube, to listen and view. Here are links to the past Webinar’s that they have hosted and have recorded for our viewing pleasure… Webinar #1 - youtube/watch?v=-7AExb4f9Xw&feature=youtu.be Webinar #2 – youtube/watch?v=DOF23NnPxoY&feature=youtu.be Webinar #3 - youtube/watch?v=XVJR0TZPd0M&feature=youtu.be This is all leading up to the Very Important, FDA Patient-Focused Drug Development Initiative for Narcolepsy. The workshop’s location is at the FDA’s Campus located within Silver Spring, Maryland but is viewable live over the internet anywhere – worldwide. Registration has unfortunately closed as of September 13, 2013, but one of the questions I will be asking is if this one will also be posted on YouTube as well for our viewing pleasure… I will let you all know what they say. This will be at 1:00 pm EST – Eastern Standard Time. I will try to write up a basic outline of the topics discussed.
Posted on: Thu, 19 Sep 2013 15:50:18 +0000