Tonight is the 3rd night that Bill and I will be sleeping upstairs in our room! This is a major thing. So far, so good, Bill is sleeping well and Im doing well so far. The first night was hard, but last night I slept through and only awoke one time. I was able to get back to sleep though. I think this new nerve medicine is helping me, I hesitate to say much, or hope much, its early yet, but I feel so hopeful! Ive had amazing fatigue, and I hope I can adjust to that. Ive been like a slug. I take a pill in the morning and another at bedtime. I push myself, but I just seem to need a long nap during the day, so for now I am allowing this. I see the new doctor again on the 18th and he intends to increase the medication if its been helpful, so I anticipate that this will be a process. If it controls this chronic pain and helps me to have control of my life again then I will consider it an answer to a million prayers! Bill has been experimenting with food for the past few days!! Best part, no vomiting for several days! He cant take in much, but anything is progress. We are trying to find a balance between small amounts of food and Ensure. Switching over is a challenge as each shake is 360 calories and that is hard for him to make up in foods. This is going to be a very slow process. Today it was soft toast without the crust. My Mom is in VT until Tuesday so we are getting by, having a low key weekend. Simple meals, taking turns resting, etc. Halee had a good time at a friends birthday party today, glad for her that she got out for awhile. We are trying to keep the kids busy as best as we can. There is still so much summer to be had, I hope we can keep them occupied! I hope everyone has a good weekend!
Posted on: Sun, 13 Jul 2014 03:52:43 +0000
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