UPDATE > I think I may have over done it a little yesterday. Fridays Follow-up visit with the Pulmonologist that diagnosed me gave me permission to drive short distances for the 1st time in 7 weeks, while having oxygen readily available. So, I decided to visit a couple of the smaller stores in my area, figuring there wouldnt be much walking involved. Well, It tuckered me out. Ended up needing a long nap yesterday afternoon & slept in late this morning. I guess I have to be careful not to do too much too soon. My need for having a H2O hose in my nose has decreased, While sitting/ rested I am able to breath room air and keep my #s up. YAY !!! But while moving about Im still in need of 2-3 liters & sleeping = 4 liters. So, the 2 Lung Lavages are working & I am on my way to recovering. He also reminded me that I had 3 major surgeries in the last 6 weeks and my body needs time to heal. I am so lucky & so blessed that although my diagnosis is extremely rare, that there is a treatment & they are working.
Posted on: Sun, 01 Jun 2014 12:25:50 +0000
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