Update on my Journey: This may be long so I will say I am sorry now and get it out of the way if I ramble on too much. :) Monday I saw my kidney/blood pressure specialist. My blood pressure was up and climbing. Any other time he would have given me a pill or done something but not this time. He said he was not comfortable with increasing the meds because he is afraid whatever made my blood pressure bottom out and put my heart into almost stopping would happened again. I told him I had 3 good days and raised my hand for a high 5 but he wouldnt give me one!! He said 3 days in a year is not very good. I told him that when you have lived that year and not had any good days and suddenly you get three it is wonderful and I will take them and raised my hand again for a high 5 and this time I got it with a smile and yes you are right Nancy!!!! wow!!! But he said I needed more than 3 good days a year which is true. He then told me that my kidney function had improved greatly. I have more kidney function right now than I have had since I was 40 yrs old. Function so bad at times that dialysis was mentioned and no one knows why it is better but I do!! :) He explained to me how important it is to watch how I am feeling and the high or lows of blood pressure and get help immediately. He also said he thinks I have a brain disease, he used such a big word that I could never repeat it, he wants me to go to Vanderbilt in Nashville if I do not continue to improve or start loosing the progress I have made. He told me they have cured people with my problems who have been that way for 21 years!! He also wants me to have the neurologist do the tilt test on me which in my opinion is simply torture for someone who has my symptoms. lol But I agreed. I have to say I left the office shocked and thrilled at the same time concerning my kidneys. Thursday I went to see my heart specialist. He asked how I was doing and I told him about my 3 good days and he was thrilled :) he said maybe I have turned a corner but we have to be careful and hopefully get more good days than bad ones. Blood pressure was even higher in his office. He also was afraid to do anything because as he said they do not know why my body is doing all this shutting down. He told me that the blood pressure I had was so low it was killing me, my heart and brain and that I can not afford for it to happen again. Because my organs were shutting down and that I would die. He said he was surprised that I am still alive. So, he pointed out that right now we have to watch the blood pressure and how I am feeling closely. He thought that I should go to Vanderbilt also but I made a suggestion of going to therapy at Patricia Neal first because he said it would take months to get into Vanderbilt. I told but in the meantime I could be doing something constructive that might help and he agreed. I will be doing therapy now. I also explained the things that happened to me when I was out in the store and he told me that it indicates that it is happening in my brain and it can not process the information and is being overwhelmed. I suggested that maybe it would help for me to go to those places with help and try to work with brain, He thought that was a great idea and that it might help the brain to rewire and I might be able to overcome what was happening to me in that area. Then we get to the monitor test and it went just like I thought it would. Heart is irregular, misses beats and adds beats, and beats too fast and then too slow and heart rate drops real low and this is why he is so concerned with blood pressure dropping and heart rate that I could die in my sleep. He said it is a miracle that I am still here because my body and organs were dying just a few weeks ago. He said it is amazing that I am here and with blood pressure and heart the way it was that it did not give them very much room to work to save me. Then we discussed the heart scan. I have had a leaking heart value since I was 40 and was told that at one point I would have to have surgery to replace the valve and I told them I would never do that. Anyway the doctor said he could not believe he was looking at my scan compared to all my other scans. My heart valve is not leaking as much blood out and is not as strained as it was..it had improved!!!!! he said he couldnt understand why...but I knew why...I ask him could it be because the blood pressure was so low and heart rate so low and being unable to do anything for so long took some strain off of the valve and he said it was very possible that it could be that. he was so happy and felt very good about it but he couldnt understand it, but I could. I told him I am healing myself!!! He looked at me and laughed and said I believe you may be doing just that. he said that to be honest my illness and what is going on in my body is a mystery to them. So, I am a mystery!!! He is sending me to a thyroid specialist and for a sleep study. I left both doctor office so confused and so thrilled. On the ride home I said I know why I am better and my heart valve and kidneys are better. It is the prayers from everyone that I have been blessed with and from everyone helping to keep my spirits up and God is healing me. He is the doctor that I have been relying on for almost one year now. He has held me in His hands when I had no insurance and couldnt see a doctor. I also believe my mother asked Him to help me. She is my angel in Heaven looking after me her and my father. Now I dont want anyone to tell me that they cant ask God to help me. I believe they can and that is what matters. I want to thank each one of you for praying for me and for continuing to pray and thank you for the smiles and laughter you have brought to this shut in person who was lost in a swirling world. I could never find the words to express what your friendship and prayers have meant to me.I am Blessed and honored to know you. Now, the reason I changed my pic is because I have been looking for a Light at the end of this tunnel and I did get some light and God is my Light guiding me. Now, for the last of the news....I still cant drive...lol ;) Each of these pics me something to me...and flowers are so healing
Posted on: Fri, 01 Aug 2014 22:42:13 +0000
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