Update time angels! Has anyone ever had to be weaned off of a steroid? They warned me that cutting back the Prednisone would make me moody. They were right, like Lisa pregnant moody. I also crave Coffee Heathbar Crunch ice cream every minute of the day. Maybe I am pregnant! I have no stamina which is frustrating, Ive always been the guy with the most energy in the room. My numbers continue to go up (thats a good thing), my brain is slowly coming back on line (depends on who you talk to whether thats s good thing or not), my body is lagging a little behind. I know some babies who dont sleep this much. Sounds like fun until you dont have a choice, then you just feel lazy. In the meantime, I am cancer free and looking forward to the end of the 100 days in about 2 months and a big shift in my meds at that time. No more daily infusions means a big shift in energy level. I cant thank all of you enough for your continued support. For anyone who has to support someone else going through this, be patient. I know there are times Im completely unreasonable with Lisa, I argue about things that dont matter, Im too demanding and too hard on my boys for no good reason ...I think if I put myself on the shrinks couch all of that is because this phase is mostly waiting to see what if anything goes wrong. Waiting is hard. There isnt anything to do. I want to control SOMETHING. I freely admit that I am way better, way better at executing a specific plan, facing a more finite list of consequences even possible death (wow that is over the top dramatic ...I so want to erase that but Im laughing too hard and hope you will too. I never thought for one minute that I was gonna die. I did not believe that was Gods plan and I still dont.) Anyway, onward and upward. You are all in my prayers and in my heart every day!
Posted on: Mon, 10 Mar 2014 01:47:58 +0000
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