We are having a good day so far. But last night was not great after we got home. He had a few infantile spasms. These are the type of seizures he used to have very bad. We havent seen any of that kind in a long while. The ketogenic diet was controlling them really well. So we are very upset and have called neurology. We are taking the day off therapy and HBOT. We gave an acute dose of klonopin last night. He did not have anymore seizures through the night. He woke up very happy and talking. He did have one spasm this morning. Its just one jerk like motion, they can cluster, but have not this time. Now we are having some stretch/therapy/Bob kitty time. We hope Hawk will be rested and feeling good enough to go greet Dave and the RIDE to GIVE crew at the Gainesville Holiday Inn tonight :) Katie
Posted on: Fri, 11 Jul 2014 16:24:27 +0000
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