We havent checked in with madden for awhile, last we heard was a few months ago when things were running smooth. He was down to just an occasional seizure during good times with some rough patches with the usual flu bugs kids get. He was at an appointment with his neurologist and it became known that his vagus nerve stimulator was not working properly. The battery had died. This device is like a pacemaker, it sends an electrical impulse not to the heart but to a nerve in the neck in maddens case. This is supposed to assist his neurological system in regulating itself, hopefully eliminating seizures. So maddens VNS was off and we couldnt know if it had been off for hours or days or weeks. He went thru a rough patch and mom tried lots of different ideas, blended oils, strain changes, changing dosing, in the end what worked was my good old standby, harlequin, this time for madden we used a higher concentration of active ingredient, and it seems to have worked. Over the last few weeks madden has seen a slow steady decline in seizures from 30+ a day to less than 20 a day and then recently to just a few a day. The plan when he was sick was to get him in for surgery to change the battery. It took quite awhile for madden to adjust to not having this device active, almost like some of the med weans we went thru more than six months ago. This adjustment entailed some of the same adventures, falls, illnesses, lots of seizures, but in the end it is so worth it to see this young man make it past yet another obstacle in his way. So now we wait, I think the doctor will be pleased, I know we have made an impression on him and the medical community locally with madden. What pleases me most is that others are learning of our success, and finding a new path, one that works and can be repeated anywhere in the world. One
Posted on: Mon, 05 May 2014 17:41:24 +0000
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