We saw the genetic doctor today and she has decided dispite his - TopicsExpress

We saw the genetic doctor today and she has decided dispite his breathing and feeding issues that pushed them towards pierre robin and stickers syndrome that actually the xrays on his ribs has pointed to an extremely rare syndrome which i cant even say let alone spell. Its something that they havent seen in 20 years and was only first found in 1966. Theyve seen a case in londons hospital and a case in america. All in all, im a little scared who else they may want him to see now tho.

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