Well we have come to the end of 2014 and what a year it has been. The reason this page started is because this time last year I was so sick in hospital with no hope or treatment just getting worse and left there on morphine. I knew there was specialist help for me in London but I could not access it so I just got worse. My family and friends decided we needed to fundraise to help me get the specialist help I needed and so it began. I had a diagnosis of mg since 2005 but not a diagnosis of eds until later. I had never been open about my illness I lived it Alone and hid it from everyone. I worked hard everyday and looked my best. I achieved as much as I could and never once let it stand in my way. So to come out and be public with your illness and tell everyone and let down your shield was very hard but I couldnt believe what happened and the support I got Instead of the tough times of the year with the added chiari malformation in my brain and autonomic dysfunction diagnosis the prolapse in my heart and also my sons diagnosis which ye all know. The positives have been outstanding. I have experienced so much outpouring of love and support I have never felt in my life. The kindness and generosity of strangers and people I know who have given their time ,energy help and support to try help me has been a life changing experience. I say it a lot,but theres no words to describe what this has allowed me to do. To go from having no hope to having hope and fight because I can get specialist care .its truly remarkable. Ive also learned how strong I am. I get days where I say why me. I do cry and say I cant do this anymore when it gets hard ,I am only human but I know theres help there and I know I have to keep trying and Ive all of you behind me that makes me stronger. I laugh and say Im as hard as the ground now . My friends my family and everyone who has supported me are a pillar of strength and Ive seen that so much this year. All my eds friends who i turn to when things are so hard to bare ,they are always there to listen. I couldnt do any of this without my wonderful mother either who helps me and my son everyday she is one in a million So happy new years to all of you, you have turned all my negatives this very tough and challenging year in to positives. Please raise a glass tonight for yourselves and for me as I cant ☺🍸 Heres to 2015. I say it every year,this will be my year Z x x
Posted on: Wed, 31 Dec 2014 12:52:12 +0000
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