Who would like to come to this fundraising event with me? Téa Lake and The Rare Disease Association Inc is a newly founded organisation by Teas Grandad, to raise money for Telethons childhood genome sequencing, to help children like Tea and Amalie who have rare diseases. I first met Teas mum at a Mums respite weekend about a year and a half ago, and Amalie and Tea have done several group therapies together. Unfortunately, they have both also had hospital admissions at the same time. Anyhow, looks like a great night is planned. Anyone keen to join a table with me?
Posted on: Tue, 30 Dec 2014 02:36:45 +0000
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