Your Action Is Needed! We need all members of Congress to understand how important it is to update the MD-CARE Act. Your outreach to your elected officials will make a difference in whether we are successful in renewing this lifesaving legislation. The passage of the MD-CARE Act in 2001 was a game-changer for the nations muscular dystrophy community. And while we as a community have together moved the needle in clinical care and therapy development and have much to be proud of today, the urgency of our community is no less than it was 13 years ago. The muscular dystrophies continue to be among the nations most devastating health conditions. We must ensure that this legislation is updated and renewed. Over the next two weeks, Congress may be considering public health laws and we need to ensure that our bill is in the mix, and that it has broad support from our nations members of Congress - and your representatives. Please visit mda.org/advocacy/md_care_act today to learn more and take action on the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments Act (H.R. 594/S. 315) - the MD-CARE Act. Please call, email or write your elected officials in Congress, and urge them to co-sponsor the #MDCAREAct. Together, lets ensure that the PROMISE that lies ahead becomes a REALITY.
Posted on: Wed, 21 May 2014 16:28:11 +0000
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