my name is raoul , y have 28 years, im from romania(europe), my doctor tell me i have mcardle disease. in year 2009 I did an episode of rhabdomyolysis afterafter I lift weights . 3 years after this episode I started experiencing all the symptoms of this disease.I did genetic testing and muscle biopsy. in my country can not diagnose specific.I want to go to another country for analysis.am invatat sa traiesc cu aceasta boala, e foarte frustrant, am langa mine familia, morning my heart beats very hard if you climb stairs or carry luggage, eat sugar to calm heart, mananc 3,6 g de creatina every day.I am a student and the faculty is very hard, you have to be active, must always eat,it is hard to sit still on a chair at school, do not leave home without my meal.I have not had episodes of rhabdomyolysis, protect myself very much. I have muscle pain, fatigue, problems walking, always high pulse, fatigue,trouble climbing stairs, to carry burdens. I do not understand why heart every morning, beating very hard when I put in motion, she makes me to eat sugar to calm. afternoon not appear to move these fast beats. I don;t found on youtube aerobic programs for people like us. I wish life easy for all!!!
Posted on: Wed, 19 Mar 2014 07:12:16 +0000
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