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Posts by Hope for Hayden



Exhaustion has set in!!! We just got confirmation that Hayden has
Exhaustion has set in!!! We just got confirmation that Hayden has the rhino virus A.K.A our nemesis. For those who dont know its like the common cold,...
Watched the sunset on the beach with my loves! Perfect way to end
Watched the sunset on the beach with my loves! Perfect way to end a perfect birthday. I turned the big 26 today!!!! Its funny how you change over th...
Hey guys, sorry its late! We are still in Philadelphia and finally
Hey guys, sorry its late! We are still in Philadelphia and finally settled in a hotel within walking distance of the hospital. I have procrastinated t...
We had an appointment with the metabolic team yesterday and the
We had an appointment with the metabolic team yesterday and the motility doctor today. Several doctors have been concerned that Hayden may have anothe...
Overnight last night I started to feel pretty cruddy. By this
Overnight last night I started to feel pretty cruddy. By this afternoon my ears hurt so bad I couldnt take it anymore....When I let Jeff drive I know ...
Wanted to let yall know that we are all okay. Our trip to CHOP is
Wanted to let yall know that we are all okay. Our trip to CHOP is sneaking up on me and I have so much to do. We are leaving this coming Saturday and ...

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