Alisher Kachkynbekov (2 years old) He is suffering from leukemia. He was diagnosed to have leukemia three and half month ago and since that moment the child is in oncology, hematology and immunology of Kyrgyzstan. Ali has taken up the third block of high-chemotherapy. I will never forget the look on the doctor’s face just before she told us that my 1.7 year-old brother had cancer. We had taken Alisher to the emergency room that morning — doctors said that he has little problem with his leg (dislocation) and they did not say anything about his blood. They gypsum his leg and after 3 and half weeks we found out that he is suffering from leukemia. It was 12th of April, between 6 pm to 7 pm. An hour later, doctor and nurse came into the room and closed the door. “His blood work is very concerning,” she’d said. “I know this is a hard word to hear, but we’re most likely looking at some sort of blood cancer.” The nurse put her arm around my mom’s shoulder, then, she asked her if she wanted to take a minute before they brought Alisher back into the room and got things going for the transfer to the other hospital. “We have to go right now? Today?” -I asked “His immune system is basically shut down at this point,” the doctor explained. “They’ll want to figure out what’s wrong, and start treatment right away.” My mom and I are cried, but 1.7 year baby didn’t understand anything — there would be time for this later. Right now, we had to focus on Alisher. We stepped out into the corridor and my mom called my dad. “His blood work is bad,” mom told to dad. “Either some kind of infection, or maybe cancer.” It hurt to say the word. “OK,” he said, “I’m coming.” The oncologist we met the next morning said the same thing: he was 99.9% certain it was leukemia. Still, I didn’t believe it. Rather, I couldn’t believe that any of this was happening. It was all a mistake. It’s been 3 and a half months now since Ali’s diagnosis. He’s doing beautifully, and although he has a long road ahead — two more years of chemotherapy at least, the next six or seven months of which will be intensive — all signs point to a full recovery. His type of leukemia, Acute lymphoblastic leukemia (ALL), has excellent cure rates, and he has responded well to treatment so far. “But for the most part we’ve accepted and are accustomed to our new reality. We’re getting through it, one day, one treatment cycle, one challenge at a time. The shock and fear of the first days are long gone, replaced by patience and determination. But there are times — in the middle of the night, first thing in the morning, or when I have some other brief moment to reflect — when I still can’t quite believe that my son has this illness.” - says my mom Baktygul Asanova. And to this day, when I think about that first, kind doctor’s face as she was about to deliver the news (which on some deep, intuitive level I was already expecting) I feel a chill inside. And if I think about those first hours too hard, for too long — as I did when writing this piece — I find myself holding back tears. It’s all too real. :( :( :( Alisher Kachkynbekov’s SISTER Zhazgul Kachkynbekova
Posted on: Sun, 28 Jul 2013 20:45:24 +0000
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