*****CALEB JOHNSON****** *****WAY OVERDUE UPDATE**** First, as always; I want to THANK each and every one of you for the kind words, prayers, well wishes, comments, positive thoughts, generous offers, and acts of kindness and compassion. These simple actions, even a simple LIKE are a MAJOR contributor to the strength required to continue this fight on a daily basis.....From the bottom my heart; THANK YOU!! - I apologize for not doing a better job at keeping you all informed and updated on Calebs progress and condition, but I do promise to try and do a better job. - Since arriving in Houston late in the evening October 26th, things have been extremely busy and daunting; To say the least. -It was conference after conference with SO many Doctors, Oncologists, specialists, radiologists, etc.... - The things that have been asked of me, and the decisions that I have been required to make, can ONLY be explained as impossible and UNFAIR. They are decisions the NO family member should EVER have to make for another, and especially, NO father should EVER have to make regarding his SON... - Our days are now very busy and challenging, going from one appointment/treatment to the next, starting early in the morning and on some days not ending until 12-14+ hours later.... Caleb is currently undergoing daily HEAVY Proton Radiation Treatments.(Mon-Fri) Each treatment lasts about an hour to an hour and a half, and are already beginning to take their toll on his 6 year old little body....His appetite is just barely above non-existent but, his vomiting is just about under control for now... .....One of the biggest challenges Caleb is facing is because Caleb is put completely under anesthesia everyday for his radiation treatments so he is NPO (cannot eat or drink) every day from 12:00 midnight until he wakes up from the anesthesia, which on most days is not until 2:30-3:30 in the afternoon....and still having 1-2 more appoints before the day is done...On average we have about 10-15 different appointments WEEKLY..... ---Right now, as I type this, Caleb is undergoing a Blood Transfusion.. The Mega-High doses of radiation are just more than his little body can compete with, and he is in need of a little boost... --ALL things considered, Caleb is doing very well, but we are still in the early stages of this battle, and the darkest days are still to come....Caleb desperately wants to go home; As do I, as well....I want to go home! are consistently the first words out of his mouth every morning, as well as the final words he speaks each night....I cannot tell you or describe how badly my heart aches for my little boy...It is simply the most painful, sickening feeling I hope I ever have to endure....I just havent been able to find a way yet to comfort and ease ALL of his fears, or find the right words to ease his ever growing anxiety and scary thoughts....As a parent; As a FATHER, not being able to successfully complete these normally simple tasks for your child is just a terrible, awful thing to experience.. PLEASE continue to keep my little boy in your thoughts and PRAYERS..... ...I also just want to say that I DO READ each and every message, comment, PM and email sent, and/or posted.. If you have not received a proper response from me, PLEASE know that you will... You ALL are my strength. Whether any of you know it or not, and whether I am willing to completely admit it or not; I lean HEAVILY on each and every one of you....EVERYDAY...HEAVILY.... ****I LOVE YALL and GOD BLESS!! - David and Caleb Johnson..
Posted on: Fri, 21 Nov 2014 18:51:14 +0000
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