Calling all friends, family, acquaintances, Rett sisters, and anyone else... As most of you know, this is Alyssas final Boston trip for the IGF-1 clinical trial. She will be the first girl to complete the trial and we are so excited. However, we have a long trip in front of us! To celebrate her last trip and completion of the trial (and to help her get through he last appointment or two), we are asking people to send her a card, note, picture.... ANYTHING!! The Rett research unit will collect them and give them to her at her last autonomic readiob next Monday (SO GET ON THIS ASAP!). The autonomic readings are her least favorite because she had to just sit and cant fall asleep or eat. So, looking through her mail will help pass the time and show her how many people are pulling for her. So, PLEASE help make this final visit a special one! Send mail to: Rett Syndrome Research Program c/o Boston Children’s Hospital Patient: Alyssa Lee 1 Autumn St, Box #26 Boston, MA 02215 Thanks everyone, and feel free to pass this on to others! The more mail, the better! We have to fill a 2+ hour time span and it will make her day!!!
Posted on: Tue, 05 Aug 2014 20:53:55 +0000
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