EB awaremess week is at the end of the month, so I am digging deep and posting about some of the realities we live with, with EB. This was my post last night, and why I dont want to speak, and why I am on a liquid diet the next few days. I did get real stupid this morning, and I brushed my teeth. You just have no idea how shocking it is to see foamy crimson spit in a pristine white sink, while your mouth is flaming up in pain. Im not talking a tiny skint spot... My whole mouth is open and raw.
Posted on: Mon, 07 Oct 2013 05:16:54 +0000
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