Ever wonder what a #dystonicstorm looks like ??? Watch as the - TopicsExpress

Ever wonder what a #dystonicstorm looks like ??? Watch as the nurse goes and tries to re position her head. Thankfully she has her advocate with her. Dont think the Nurse could of moved her head if she tried. WE NEED MORE DYSTONIA AWARENESS EVEN IN THE MEDICAL FIELD. HOW ARE WE TO BE TREATED WHEN EVEN THEY ARE NOT AWARE ??? IT MAKES IT VERY HARD ON US WHEN WE NEED EMERGENCY CARE. OFTEN TIMES WE ARE UNABLE TO SPEAK. I HAVE BEEN THERE MANY TIMES MYSELF !!!

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