Facebook and other companies have been in the news for conducting research secretly and users. According to the NIH Dept of Health & Human Services, and codes evolved from the Nuremberg Trials & Syphilis Study at Tuskegee, minimum STANDARDS for ETHICAL Research include voluntary & informed CONSENT: i.e., (f) Human subject means a living individual about whom an investigator (whether professional or student) conducting research obtains (1) Data through intervention or interaction with the individual, or (2) Identifiable private information. Intervention includes both physical procedures by which data are gathered (for example, venipuncture) and manipulations of the subject or the subjects environment that are performed for research purposes. Interaction includes communication or interpersonal contact between investigator and subject. Private information includes information about behavior that occurs in a context in which an individual can reasonably expect that no observation or recording is taking place, and information which has been provided for specific purposes by an individual and which the individual can reasonably expect will not be made public (for example, a medical record). Private information must be individually identifiable (i.e., the identity of the subject is or may readily be ascertained by the investigator or associated with the information) in order for obtaining the information to constitute research involving human subjects. Are you listening, Facebook????
Posted on: Tue, 23 Sep 2014 06:17:05 +0000
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