From a momma: Wanted to share our joy with other tubie parents! - TopicsExpress



          

From a momma: Wanted to share our joy with other tubie parents! Our son Bentley, 9 months old, has Esophogeal atresia, tracheoesophogeal fistula, and tracheomalacia, severe GERD severe silent aspiration and has a nissen fundo and strictly gtube fed he had his first esophageal dilation for a stricture at the anastomosis site on April 7th, starting two days ago we were told we could start bottle feeding during times hes wide awake. By tonight he finished his 100ml feed with little to no choking spells. Dad and I are so thrilled we had to share our excitement with all our tubie fam!! Yay go Bentley!!
Posted on: Fri, 18 Apr 2014 13:29:47 +0000

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