Good morning! I so feel asleep before I posted last night. Getting up with Brody at 4:30 yesterday morning and taking care of all duties by myself (while Tj is working nights and sleeping all day) will wear you out. Brody had a pretty good day yesterday. A little fussy here and there but no S word so that just makes the day great. I can deal with screaming all day other than that. Hope did have some times where she wanted to rest. I can recall now going back where she was tired when over doing it while playing or walking. A lot of the things are starting to make sense with Hopes diagnosis. But I never even imagined this for her. She has always been able to bend her limbs but still it wasnt anything too unheard of for children and it never sparked her doctors or anything. And she also bruises easily now I go back and think back in time. Im still pretty much crushed but Im trying to go in survival mode for my daughter now. I had to do this for Brody too go in this mode when he was 6 mths old but I just didnt want to do it again. You dont wanna see one child suffer but then your only other one. But in life you either sink or swim. And I will swim for my children! And we will do this one day at a time. This week is a busy week for our family. Doctors appointments for both the kids tomorrow. I gotta get Brody cleared for his adenoids and tubes surgery on Thursday. He will be admitted due to his seizures the doctors want to be prepared just in case. And hopefully the cardiologist can see Hope this week too. And then hopefully the rheumatologist very soon as well. I will push for a EEG immediately and get her doctor checking her organs to make sure everything is working properly. The doctors know I dont play and will keep pushing until something happens. With this disease she has been diagnosed with Ehlers Danlos you have to check all these things to make sure everything is ok and working properly. I never had heard of this before so its all new but Im learning. And I keep joining support groups to help me learn more from others and how to help Hope. I keep trying to keep Hope upbeat. She is a smart little girl and her doctors and us are trying to help her understand what she has. We havent got any mail in little while so if you want to send a letter to Hope or Brody the kids would love it. Hope checks it herself with my help and loves to get mail. I know yall have asked some questions about the kids so I will try to answer most. Hope wears a size 7. Shes still in a six but starting to wear 7 so we will need 7s now she is getting tall. She loves anything toy wise. Loves princess stuff and Snow White, Doc Mcstuffins and any Disney stuff. DVDs for doctor trips. Activities she can do. Or dress up clothes but anything she loves. And Hope loves getting a simple card! She loves mail! Brody is in a size 4. And he plays with baby type toys. Hope is 6 and her birthday was July 6. And Brody is 3 and his birthday is May 1. Brody has numerous health issues too. You can read more in the info section. Me and Tj have been married for 14 years. We followed Gods plans of adoption after 9 heart breaking miscarriages. Hope and Brody have the same birth mother but arent sure about the birth father. But like I said these are only questions I have been asked and please dont feel any pressure. And here is the address. Brodys Love Box 178 1958 North Columbia St. Ste# 6 Milledgeville, GA 31061 And if you have sent a message Im trying to get to those and read and reply but I have been so busy with the kids. So dont think Im ignoring you. I barely have time to clean anymore. I know Im gonna need some help to help me some. Housework is on the last of my list but it does need to be done. Doing this alone just me and Tj can be exhausting and Tj is working his butt off so we can live. We have no nurse Iam the nurse and all above! We will make it! God will provide! I know that! Well I have to get busy with our day. So much to do I will be nonstop until bedtime tonight. This weather is amazing too! We love this time of year! The leaves changing and Beautiful and cool:) Well I hope you all have a blessed Sunday and know we love yall everyday! Lets all rock this day! And like I said this video was done last night but I fell asleep before I could post it. Much love, Hope & Brodys mom (Leigh)
Posted on: Sun, 28 Sep 2014 15:04:13 +0000
Trending Topics
Recently Viewed Topics
© 2015