Happy Monday everyone. Hope your day is going great. Things are moving along bit by bit over here with our little squeak. Weve got a few updates to share, and some stuff that wed love to have you all pray with us for. First. Quinn had a bit of a tough week. As some (if not all) of you know they took Quinns nasal cannulas out which were giving her oxygen support after taking her off of breathing support. That in itself is incredible. Seeing that tiny face without anything in front of it but her tiny feeding tube is amazing. So were thanking God in a big way for that. To think that shes breathing 100% on her own after everything shes been through is just incredible. I cant say that enough. With that, they also thought with how well she was progressing that theyd see what she could do if we cut her methadone dose in half from .4 to .2. For the first few hours there didnt seem to be much of a difference, but we noticed that she started to be a bit more fussy as the hours went on, till Saturday night it was really hard to get her comfortable. On top of that, she started to spit up a lot towards the end of her feedings. All related to withdraws from the methadone. After a sleepless night Saturday night, the doctor came in Sunday early afternoon and decided that these were the effects of withdraw so we upped her dose back to .4 to give her body a break, so we could start the wean again today/tomorrow. After we upped her dose, she was back to her calm happy self. At this point in her dose, its less about pain relief and more about chemically weaning her off. Not sure how much of an effect its actually having on her since its so small, but who knows. So pray that later today or tomorrow, theyll start to wean her again and that shed deal with it in a positive way. Second. Since all of her breathing support is now gone, well start to explore the wonderful world of bottle feeding / nursing! However, before that really starts to get going they needed to do some swallow studies and other sorts of eating related things that Im not smart enough to properly elaborate. When they came in this morning to check her out they decided that shes not ready at this point to move bottle feedings. Something about how her mouth and cheeks, and jaw and all that fun stuff moves. At this point shes taking her pacifier great, and thats a positive, but shes not moving her parts the way that would help her feed. On top of that, her heart rate raises when she tries which just says that shes stressed when shes giving it a go. So the therapist taught Ansley some stuff that we can start to do with her on a daily basis to try and help her move towards a place where shell be able to bottle feed. So it might take some time to get that going and for her to learn how to do what she needs to do. So for that, lets pray that Ansley and I teach her how to do her thing exactly how the therapist taught us to do it. That shed take to it like a duck to water and well be onto the next stage faster than the doctors and nurses thing well be. And thats pretty much it for now. Shes doing great. Shes such a happy little baby. Big eyes comb the room every second shes awake, and she loves her mother and fathers voices. Its pretty great. With all this, weve still got a long road ahead of us to get her eating properly and with that a long road ahead till we all get to go home. The great thing in this is that there is no fighting with health issues or anything like that. That fight is over and it seems like were onto the next part. Just gotta get her off the methadone. We love and appreciate you all so much. Here are a few pictures of our favorite super hero!
Posted on: Mon, 08 Sep 2014 19:37:10 +0000
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