Heading back home after long day. No solution for the tube just keep adding water so our new goal is to start giving milk through the mouth (food he is already taking in more). Damian also got his first dose of synagis and will continue getting it for the next couple of months. We also met with genetics in which she send Damian to get some blood work for testing. Blood work went well for the first time the phlebotomist did not have any problems withdrawing blood. We got to see our favorite nurses, doctors and special needs clinic team which we are so thankful for them. And I love the love that they give Damian. Damian also saw one of his home health nurse Barbara. Finally Damian, Mom, Dad and one sister will be part of a research. This research make take years but I know this will help us and other families know more about one of his condition. Thank you all for having Damian in your prayers and following his journey. De regreso a casa despues un largo dia. No los dieron una solution para la sonda de comer. No mas seguir agregando agua al globo. Nuestro Nuevo goal es que Damian tome leche por la Boca. Damian tambien recibio su primera dosa de una inyecion que tiene que por los proximos meses. Damian tuvo cita con el genetico donde cual la doctora mando a sacarle sangre para unos estudios. Por primera vez la Flebotomista pudo sacarle sangre a Damian sin nigun problema. Tambien vimos a las enfermeras, doctora, y el equipo del la clinica special needs por cierto estamos bien agradecidos con ellos. Y me ecanta como quieren a Damian. Y finalmente Damian, mama, papa y hermana seran parte de un estudio. Este estudio tomara años pero los ayudara a nosotros y otras familias saber mas sobre una condicion de Damian. Gracias a t todos por seguir teniendo a Damian en sus oraciones y siguiendo su historia.
Posted on: Fri, 10 Oct 2014 01:05:08 +0000
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