Hello, group :) I find myself in need of some advice. Long story short, Im in desperate need of a powered wheelchair through my rapidly declining ability to push my chair long distances. I applied for one last August, and got my preliminary assessment in the following December, then had an appointment at the Disablement Services Centre at James Cook hospital in Middlesbrough, who denied my application. After spending a couple of months fighting this appeal, I was referred for another preliminary assessment at my local wheelchair services, which was again at Lancashire Road hospital, and this time my application went through. I was told by John, the new man working my case, that I could have a wait of up to sixteen weeks, but I ended up getting a powered wheelchair this Tuesday just gone. Why am I asking for advice if I have what I asked for? Well, neither John nor the engineer Ken, listened to a damn word I said regarding my disability, and gave me a chair with absolutely zero neck and spinal support, nor suspension decent enough to minimise the hell on my spine and my remaining butt cheek. Ive been left in physical pain since first using that wheelchair on Thursday afternoon. It aggravated every part of my disability possible, and even set the nerve endings away in my skin graft, which ignited a good several hours worth of phantom pains. I rang them up when I able to on Friday, and all I got was Ill phone you back on Monday when Ive had a chance to speak with Ken. After waiting months for a chair that doesnt come close to doing what I need it to do, and months of being quite literally housebound where my idea of a day out is an hours trip to the doctor and pharmacy every 15 days. Im getting a little stir crazy, very upset, and not to mention angry at practically being ignored every single time. John and Ken made me promise to cut my medication down, but how can I do that without having the correct equipment to help my body cope? Ive asked this question over and over and over, but its like talking to a brick wall. I need advice on how to make them listen, and more importantly, understand that I know what I need to cope on a daily basis. Any and all advice will be gratefully received, and thank you in advance, Jude xxx
Posted on: Sat, 20 Sep 2014 21:36:02 +0000
Trending Topics
Recently Viewed Topics
© 2015