Hi Friends, I wanted to share with you Marys video and my post - TopicsExpress



          

Hi Friends, I wanted to share with you Marys video and my post from a year ago. I remember this very very difficult time sooooo well. I remember being at our cabin and getting ready for bed and Mary coming into our bedroom and saying...Mamma, Im cold!! Thats all it took and Mark was on his way to get a thermometer at the store. When he returned her fever was 102.7 and we flew out of the cabin doors and were on the phone with Ann Arbor. They told us to get to the closest hospital and within the hour we were in an ambulance on the way to Ann Arbor where we spent the next 10 days. FEAR!!! Over- took us! We were almost 2 years into treatment and the fear of RELAPSE was HUGE!!! We sat in that hospital room gripped by FEAR!! I remember the outpouring of prayer support. Friends, it is what sustained us. God healed Mary Helen in a big way and restored our PEACE!!! Look where Mary is now!! She is swimming and riding and LIVING!!! To God be the GLORY!!!! This is my post from July 14, 2013........ 4:18pm. Hello Friends, I have snuck away to a desk top computer so that I could update you on Mary Helen. The good news is that her temp. has stayed below 100 for the past 24 hours. The bad news is that her white blood cell count has dropped from 1000 to 800 and the anc can not drop below zero so it has stayed the same. The sore on her tongue looks better but her neck is still quite swollen. The lymph nodes are still very swollen. The doctors have been in several times and they are assuring us that this can happen. Blood just can get wacky with all of the chemo her little body is getting. When Marys blood cells get low, she is susceptible to all sorts of attacks on her body....thus the sore on her tongue and the swollen gums. Marys body then lacks the ability to heal these things leaving her at risk to fever and lower blood levels. It can be a downward spiral. Mary is tired but really feels just fine physically. However.....emotionally she is spent. Today the doctors had to tell her that her Make A Wish trip would have to be postponed. She is devastated. She has charts all over the house counting down this upcoming trip and to be told that it can not happen has left her well....quiet, sad, withdrawn, discouraged and helpless. She crawled up into my lap...buried her head and wept. Mamma, why does this have to happen? Friends, what do I tell her??? Yes, it is only a trip but when you have so many restrictions and expectations on your little life the thought of getting away and forgetting about cancer is like water at the end of a long run or presents at the end of the party. I do not want to get off task on our prayers because our priority needs to be that Marys blood rises, that the swollen nodes are ONLY a reaction to the sore in her mouth, and that there is nothing elso going on in her blood. But Lord please comfort my baby girl. Help keep that smile and the cute skip in her step. We are so comforted by the numbers of you that are getting on their knees to pray for us. It is on the days that we are too weak to hold our arms up that we feel your tender hands lifting them for us!!! God is GOOD and we will choose to trust that this is just a little bump in the road and that he will walk with us.. I am guessing that we may be in here for several days. Mary just went for a walk with her little mask on to the bamboo garden in the courtyard with Molly her all-time favorite in-patient friend. Daddy and Aunt Sheri are going home for the night and Nanny and I will stay. We may have to do some tag-teaming this week. Thanks again for your wonderful support. We love you!!
Posted on: Tue, 15 Jul 2014 04:07:21 +0000

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