Hi everyone. Harley is home now and waiting for her teacher to come by. She ended up not going to cardiology today but will soon. They are going to schedule her for an echo and call me with that appt. She did go to pulminology today though and her sleep study results were the best they have ever been! Now she will just go for annual sleep studies unless there is a problem. This also means she wont need surgery for her broken nose. Yesterday her dentist appt went well. She does have one more tooth up top that will need to be pulled if it doesnt come out on its own soon. As for her other teeth up top that have been missing for so long the xrays show the new teeth are finally moving down and should be poking through soon. I just hope they are not damaged. They wont be able to tell that until they are visible. Her catheter has now been out for 3 days and so far the monti is working well. Today her blood pressure was pretty low again so still keeping an eye on her in case it is shunt related. Next week we will be in Chicago and although I dont want anything to happen with her shunt it would be a good time for it since we will already be there. Really hoping and praying thats not the case though. I think thats it for now so enjoy your weekend and Ill update again later:)
Posted on: Fri, 14 Mar 2014 19:41:08 +0000
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