Hi everyone. How is everyone tonight? I am doing a late night update. our schedule has been crazy since getting home and Jazzys headaches have been ongoing and not tonight but last night, we went to the Er bc she had some severe pain and some definite swelling on her left side under her ear and if you touch from the ears across the bottom part of her head, she will almost scream and punch someone out of pain.she almost knocked a doctor out unintentionally. Her had out of a pain reaction raised up in the air and he was bent over pretty close to where it had went up. She felt so bad but he had caught her off guard when he touched it and didnt tell her and yeah, pretty intense. We had gotten to the er around 10 pm and the neurosurgeon on call wanted us to come in just to check and make sure things were okay bc some swelling is normal and some is not, i guess they have a way of seeing the difference. So we went in around 10:30 and left around 5:30 am. They did a cat scan and blood work and urine and things seemed fine. They checked her blood to make sure it was clotting okay. They gave her an iv (only took two sticks which made us all happy bc Jazzy was like handing over her arm expecting quite a few tries and she looked like she won the lottery when the nurse said it was in lol. That was a relief for me to bc i was stressing over it the minute they mentioned they wanted to do an iv.) They hooked her up to watch her bp and heart rate and bp was in the 154 range when we first got there bc of how much pain she was in. They had to give her morphine, toradol and bendryl. The nurse told her she would be knocked out and asleep before she would know it and if not she must be superwoman. So three hours later, Jazzy is just quietly watching tv, Her pain was then at an 8 vs the 16 she had told them she was in as she cried and tried to keep from getting too upset when we had first arrived. So the nurse comes in and Jazzy goes I guess I am Superwoman. I must have forgotten my cape todayand she said it so seriously and so matter of fact the nurse couldnt help but laugh and admit defeat. Have i ever mentioned how much we appreciate nurses? Because they have so much of an impact on patients and family. I may have said thank you before to all the nurses out there but even if so, its worth saying again: Thank you to all the nurses out there who work so hard! So if you know of a nurse,or see a nurse, please take a moment and tell them thank you for all they do. :) So for now, they want me to take a picture each day or anytime i think there is a difference in the size of swelling or shape of her head and do so until our appointment on Friday. So I am going to do just that. They have also put her back on steroids. We are still trying to figure out the school thing at this point and what is going to be best for her. With physical therapy being 3 x a week and not knowing what speech therapy (that will be at a completely separate location), home bound is going to be the best option her teachers and I feel, at least until say December or until she gets caught up. I know she is not thrilled with having to do any home bound at all and i Know she wanted to be right back in school but little missy ( I know she is 18, but she is still my baby and its always been a nickname I call her lol) has a tendency to overdo it and gets very impulsive with how she is feeling and doesnt think about the effects of what her body will be telling her later, after the fact. Part of the challenge is for her to realize that she has to build up slowly. She thinks i am sometimes just evil bc I remind her of this. Of course I want her to push herself and to be motivated and to work hard, but I also do not want her to set herself back or set herself up for more pain and there is a fine balance. To her, its no white line of balance, its like she doesnt think and she tries to get things done right away. I hope i am making sense and not just rambling lol. On a different note, has anyone seen the movie Blended? it was a good thing Jazzy ended up going to bed as we watched it bc she would have been laughing so much it would have really hurt her head. She is currently on sneeze 21. We asked her how much longer is she going to keep counting her sneezes and she replied until they stop hurting. So just fyi she is on number 21.In all seriousness, though, sneezing,hiccups, laughing and coughing all really hurt her much more than you would think it should. Its on my list of questions for the doctor on Friday. This month is FLYING by. Its insanely crazy how fast it is going!! She keeps changing what she wants to be for Halloween but she is adamant about doing something for Halloween so I am going to try to figure out what it is she wants to be here pretty soon lol. I still have some pictures, lots of them to post, and I am sorry it has taken me this long. Today I got all of her medical records that i have gotten so far organized finally and things are getting in place. I am back in full swing with classes, one of which is accounting and math is my kryptonite and so hopefully I can continue to do as good as last semester. Lol. I am not going to lie, it seems I may be in over my head and I may need some prayers lol. But I am not sounding the alarm bells just yet :) I found out yesterday that i made the Presidents list and I was at first wondering why I had not made the Deans list, then I learned the Presidents list is actually the higher honor at Kaplan. I am so blonde some days lol. I am glad i can laugh at myself because it was really kinda funny. I was bummed for a bit thinking how did I not make the Deans list. it took a bit for that light bulb to get lit I guess lol. So that is the update so far! Book length as always! I am glad to see I never run out of things to say lol. Jazzy has been very quiet and in her room most of the day bc she says her ears have amplified sound and she almost hears like a liquid moving around that she can hear. Idk she has been very quiet today. I know she is trying to handle the pain and not let it get to her. She is trying so hard. I am praying Friday that they can reassure me things are okay bc after all she has been through and as sick as she has been , it is hard to not worry if something is going on or not when she acts so differently and is in so much pain. I am sure it is the nerves trying to reattach or something very normal and I am not worried in that aspect, I am just more worried about the level of pain and how she is coping with it all. Sometimes she tolerates the pain too well and by the time she comes to us, its out of control and insane and that is something we do not need lol. But overall she is doing wonderful and we are blessed and God is good! So what is going on with you guys today? Anyone want to do some share for shares?
Posted on: Sat, 25 Oct 2014 08:46:25 +0000
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