Holy snow balls!! Its been snowing here for 24 hours straight, a - TopicsExpress



          

Holy snow balls!! Its been snowing here for 24 hours straight, a total white out:) Thankfully, Im all snuggled up inside, nice and warm. Today I was a little fussy. I had a bloated belly. I normally have a pot belly as a result of Beckwith Wiedemann Syndrome, but today it was a little bigger and a little harder. Fast forward a few hours and I had 6 BMs and lots of gas. Whether its the antibiotic or the food I am eating, something is making my belly mad. My belly was back to its normal size tonight, thank God, because this girl needs a break from all of this belly drama!! Hoping it was just a passing storm and tomorrow will be a fuss free day:) Something pretty awesome happened while Mommy was holding me on her lap today. I was sitting on her leg with my feet on the couch. I decided I wanted to stand up!! I pushed and lifted myself right up in a standing position (with my head and shoulders leaning on mommy of course)! I mean, Im not one to brag, but holy cow:) Dont you worry, I WILL be changing my status from non-mobile to mobile one day! Mommy said that people didnt think I would live, eat, or countless other things and look at me know. I set goals and then we go after them. One day in the future you will see me on the move, I promise
Posted on: Tue, 27 Jan 2015 04:00:04 +0000

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