I am going through a real struggle right now. I think that I have been to some degree in denial about my RP. Yes I cannot see in the dark, have no depth perception, am no longer able to drive etc, etc. however in the past few months I have noticed significant deterioration in my vision and progression in the typical RP symptoms. I am starting to realize that very soon I am not going to be able to fool myself any longer about the things I think I can do and think I will be able to do in the future. I have met a very kind and caring man who is very helpful and understanding. He tells me it does not matter but I dont think he realizes what this could mean . We are of retirement age and I dont want his retirement to have to be to look after a disabled partner. He deserves to enjoy his retirement and not be tied down with an albatross around his neck. I am also not sure how I am going to react and cope to being blind or at the very least impaired so that I cannot see my grandsons smile or the faces of my loved ones or be able to knit and crochet or do the crafts I so enjoy doing. How is it that God saw fit to inflict us with this condition. If there is a reason for everything please tell me what it is? What will I do to fill the days? How will I be a productive member of society? What do I do when my friends are no longer willing to take me places ? How do I get my family to understand how this feels? At best I am frustrated and at worst I am terrified
Posted on: Mon, 15 Sep 2014 22:11:38 +0000