I feel good. I really do. And I am so thankful for that. I guess thats one of the reasons why this disease can be so frustrating. I appear ok on the outside, however, there is mass chaos and destruction going on inside. Last week I wrote about my annual MRI. That was before I knew the results. Well, the results are in. It shows I have new lesions, meaning the disease is not being controlled well enough on my current medication. After numerous conversations with my neurologist, and a few more MRI scans, we are going to come up with a new plan. She explained to me the two goals of medication therapy. 1). Reduce the amount of relapses (flare ups), which this medication is doing. I am not having a relapse or any symptoms of the disease. 2). Reduce the amount of lesions (damage) occurring as a result of the disease. This is the part where my medication is not doing a good enough job. Thankfully there are options for me when choosing a new medication. Next week I get to participate in a MS study going on at Stony Brook to evaluate the disease. I will be having a PET MRI. This will give us more information about whats going on inside so we can treat it more effectively. I write openly about this for several reasons. -I want people to know more about this disease. I knew near to nothing about this disease before being diagnosed. -I want to remind people that although things may appear ok on the outside, there can be serious problems going on behind the scenes. This goes for many other conditions and diseases, not just MS. -It is easier for me to write here for my closest friends and family to read. - Lastly, its MS awareness month! Hopefully you can say you learned something new about MS by reading this. For now, I proceed as usual. I will continue to try to be better to myself and take one day at a time... Thank you for reading
Posted on: Sun, 23 Mar 2014 13:39:47 +0000
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