I have a mini rant and Momma Shockey please just ride it out... I hate Wheelchairs.. I actually loathe them.. I have smashed my hand, smashed my foot, somehow pulled my shoulder and I am so independent that its actually depressing. I can do nothing hardly without assistance... Thats the life every 30 year old wants!! I go for my 6 week surgical follow up on Wednesday and I guarantee nothing will change because it feels no better.. Yes I stand on it when I transfer from wherever back to my chair but the bone still feels like it is coming out of the skin.. When it rains, beware.. The waterworks will be coming.. It hurts sooooo bad... I have become a human barometer! Yes I know I sound whiney but you know what I have been dealt a shit hand for the last 4 almost 5 years. Have I told you my new Endocrinologist took me off the Prednisone?? Yep just like that.. I stopped and was replaced with corticosteroids that have hardly any of the side effects the Prednisone have.. Yes Im still kinda tired (but come on I barely move) and yes my blood pressure stays on the low side which she said was to be expected but its been 9 days and and I havent crashed once!!! Now my question is why in the hell it took someone 1 time to do this when everyone else who was contracted through CAMC that were my Drs just left me lying in the cracks they shoved me in? My quality of life has been awful these last few years.. i have doubled in weight, had a mini tia, I have neuropathy and myopathy, stomach issues, my hair has fallen out, my skin is embarrassing to look at, I have rhabdomyolyosis, I have bones so brittle that this new Dr is going to do a full body bone scan because she thinks I will have to take Fosamax to prevent any more bad breaks, I take 325 mg of aspirin TWICE day, YES YOU READ READ THAT CORRECTLY Ive had problems with my kidneys, I can not get in the sun, I NEVER EVER go out in public... The amount of physical and mental damage done by one drug that everyone ignored has ruined me and will take years to fix... I AM 30 YEARS OLD AND HAVENT LIVED SINCE I WAS 26 I use to say it was just my path I was suppose to take... I now know thats bullshit and I want someone to blame.. Someone to yell at.. Someone out of the 20+ doctors I have seen at CAMC to tell me they are sorry they messed up my life and the first years of my marriage!!! I WANT TO SCREAM!!!!
Posted on: Tue, 19 Aug 2014 02:26:35 +0000
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