I need a moment to vent, and as positive as I try to stay, today is not one of those days. First I want to say that I would never leave Bill, and I love him more now, than I ever had. That being said, I can sympathize with people who have made that choice, because when your spouse is injured catastrophically on the job, it isnt only the injury you have to deal with. Bills a piece a cake, but we will forever be tied, bound and restricted by the fact that he is dependent on another entity for his care. Sadly, we have no choice in this, as there is one and only one organization that governs Bills care. I cant tell you how frustrated it is to have to ask for permission when it comes to my husbands care. Today is just another shining example of the crap I have had to deal with over the last 17 months! I am tired of keeping quiet, and I am so freaking mad that tears are flowing out of my eyes. Bill is coming home tomorrow and Im already a nervous wreck. Then I get a call that the company Ive been told will staff Bills nurses couldnt negotiate a reasonable rate. THE DAY BEFORE HE GETS HOME!!!! I dont think that these people realize how stressful this is on me. We have no plan in place for tomorrow, I have no idea if anyone will be here, no meds have been ordered. How can I deal with this for another 40+ years? There is so much more to this, but the bottom line is that I am now married to Bill and to his new governed body! (Did I mention that I have to get permission to take him out of town?) Welcome to my crazy new life.
Posted on: Wed, 05 Nov 2014 19:18:04 +0000
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