I regret to inform you that I will be scheduling this page for deletion and it will go off of Facebook in two weeks. This does not impact in any way the production of My Eyes Your Eyes II or any other future documentary that I have planned. My twitter account is linked to the bottom of this note. Feel free to add me and know that I screen my followers. I’m changing the location of my films on line so my current YouTube page will not be valid very soon. My website will still be valid only I am updating and changing much of it over these next couple of months. These are the facts flat plain and simple. My medical bills have more than tripled since wrapping My Eyes Your Eyes in 2010. I live check to check month to month without any financial support and living on a shoestring doesn’t allow me to make consistent payments on all of these medical bills. I cannot begin searching for full employment for at least two more months because I’m in the process of getting all of my medical insurance back, completing physical therapy, and finding a pain medication that will not give me horrible reactions. I am trying to understand how Medicare can legally cut my medical coverage when it is attached to my SSD. I also need to protect myself from getting physically sick. When I say physically sick I mean physically sick. I’m not sure why some people constantly assume I mean mentally. That’s their constant assumptions. I’m not backing down when it comes to getting to the bottom of my true diagnosis. It was great news to me when I realized the reason that I’d stop talking sometimes, say things that didn’t make sense, and have certain body parts stuck in certain positions was related to my low blood pressure, low blood sugar, and dehydration over a long period of time because so many people were trying to convince me that I was crazy. I know myself and I know my mind. . This all finally made sense to me after spending 8 days in the hospital on IV’s in both arms after getting the stomach flu so bad that I had to take even more time off of graduate school. So I wasn’t as batshit crazy as most of my campus and community thought. Never ever ever ever ever ever under any circumstances in a billion years take somebody to the ER with you if you are feeling week and like you can’t breathe on your own if they will not advocate for you with the doctors. Don’t ever ever ever ever ever ever allow another classmate to read your medical records or discharge papers because more times than not they will spread it around your school. For that matter don’t allow anyone to see them especially if you are looking into second or third opinions. People get a snippet of some information jump the gun and leave you to clean up their mess. When someone like me is concerned with a visible disability those rumors lies, gossip, and half-truths mixed with half lies spread over time can snowball until the stress gets so bad that it causes physical health issues. My father died of heart disease and my cholesterol levels were running a little high during my last CBC and stress will cause a heart attack. I cannot afford to die like my father before I even turn thirty because I have spent five years of my life bringing light to disability justice issues with the attention of assisting while at the same time being beaten to the ground with lie after rumor after harassment, after all the work I’ve done for free! If I do die though it will be because of the impact of the stress on my body as a result of years of hardship, torment, and fighting for basic human rights without consistent support. Countless hours of thinking, creating, writing, reading, researching, fundraising, discussions, and planning all with the hope to help make my community or even the world a better place will not disappear bc I accomplished some of my most difficult professional goals. I have had so many people mob me. My losses have outnumbered my gains. I do believe that it’s because I am a young female student with a visible disability living during a time where the ADA is being undermined and manipulated every single day. Disability rights advocates are “hated” because we advocate for organizations and businesses to allocate money toward accessibility. Some people would rather their money go to other parts of the budget. Some people believe that since disabilities don’t impact many people than there isn’t a good reason to put the money into it. The ADA is law and that law stands and will stand to give us the rights we deserve as humans! That is a universal fact and it won’t be ignored. The ADA will be gone long after my lifetime and I am not the reason the ADA exists so so many people should have stopped blaming me every time I tried to bring accessibility to their organization because if I didn’t do that than I’d be just as wrong as the people who actively set out to fight accessibility. I did what I was taught to do in the program that I’m spending the rest of my life paying off student loans for. I started this disability justice work after my cousin my ally was murdered over $60 in a home invasion. His death sparked all of my professional work in disability justice. This is my assignment from God so none will stop me until God calls me home. My cousin was one of my biggest advocates and he knew that I should have never lost most of my sight so young. My work is my life mission and the grand design cannot be tampered with. I want to personally thank those of you on this page who is honestly following my work. To the handful of you who I kept here who have malice intentions you have made an unwise use of your energy. –Nicki twitter/nicki_Hurley
Posted on: Sun, 08 Sep 2013 19:02:49 +0000
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