I was not going to post this, but while we were in Chicago at the MAGIC Conference, for Cullen, the number 1 thing we heard from the other parents, was how frustrating it is that people dont get how serious PHP is. Our children LOOK and ACT normal, but there condition is very serious and can get serious very quickly. So, this post to educate our family and friends - we are blessed beyond measure by your care, concern, and support. This past Wednesday was like most mornings. Cullen woke up, we got him up, and he took his meds. He ate a decent breakfast - 4 pieces of sausage, a cup and a half of apple juice, and he picked at his pancake. He ran around and played with Jerek. Nothing unusual. We went to the library for story time. He was crazy nut-so (as usual). Running around during the story, rolling on the floor, changing where he was sitting, and talking loudly. YES, I am THAT mom, with THAT kid. Not only are we dealing with the unnoticeable PHP, but Cullen also has sensory issues and for whatever reason, story time makes him crazy. But we go, I endure the intentional NON-stares and the sympathetic smiles even though Cullen is one of the oldest in the class and one of the only ones who cant appropriately participate. But I use it to implement therapy strategies, so we go. Anyway, after story time we were crawling around on the floor looking for books. I stood up and Cullen laid his head down and said, I take a nuh-night. What? I take a nap. It was only 11. He NEVER asks to go take a nap. Mommy internal sirens went screaming and I started looking for our red flags. I picked him up - he felt twice as heavy - already he was getting limpy feeling. He snuggled his head onto my shoulder and he felt clammy and his forehead was wet with sweat. I set him down in a chair and grabbed his hands, they were ice cold. I grabbed Jerek and had him sit with our bag and Alora and scooped Cullen up and his glucose meter and went to the bathroom to check his sugars. They were 58. 60 is our red flag number. They should be in the 90s to low 100s. I gave him a stress dose of his hydrocortisone, grabbed all of our stuff, my 2 other kids, and lugged the diaper bag, 27# Cullen, and Alora in her carseat while Jerek followed out to the car. I called Jason and drove to the church. It is just down the street from the library and it was the first place I could think of that would have juice and crackers that I wouldnt have to buy and run through a store with all 3 kids to get. I got him to drink the juice and as he ate the crackers he perked back up. Just 20 minutes after his stress dose of meds, I checked sugars again and they were 87! Praise the Lord! An hour later they were 138. I took him to the doctor that afternoon to see if he had a brewing ear infection or something that may have caused such a sudden and unexpected drop in sugars, but he is healthy. We had no warning, it happened fast, and we could have lost him if I didnt know the signs and what to do. PHP is serious. Adrenal Insufficiency is the secondary condition that causes him to crash. They are life-long, life-threatening conditions. You cant see them, but they are there. Waiting to rear their ugly heads.
Posted on: Sat, 19 Jul 2014 20:25:00 +0000
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