If days had colours, yesterday would have been a mixture of black with multiple shades of grey :-/ After months and months of meetings, assessments, visits from the local council, occupational therapists, architects (the list goes on) we learnt the cost of adapting our home. The absolute basic build cost, without necessary other adaptations to our home, came in at £41,500 so even with the full £30,000 local council grant (which reduces to £28,500 after the architects fees of £1500 which have to come out of it) the shortfall is £13,000. However, once you add the other necessary changes, our part of the bill for the build is well in excess of £30,000. Even if we could come up with this money, after long intensive talks, the whole process of us living as a family at the address whilst the work went on and the eventual disjointed layout of the property (once the work had been completed) means that we have no other choice than to sell our home. All of this is dropped on us just two weeks before Dave returns back to work. The whole issue being that he couldnt return back to work until the adaptations had been done so that I could look after Claudia alone. We do not have the room for her, her equipment, or even the necessary equipment for her as most of it was to be fitted/installed as part of the build. So now, our home, becomes a property, I have to detach myself from it and prepare for it to be sold. We have to pack up our lives, once again and find a more suitable house, but at the same price, which seems impossible in itself, and then, we are allowed to reapply for the grant to have that house adapted. I am exhausted just writing this let alone doing it. I am not defeated, I am just tired. It is approaching forty months that we have been living this life now and it is far from over, in fact, I will go back to what I said at the very beginning and this will never be over. Life with a brain tumour or life with someone you love with a brain tumour is far from easy. Still, we love you Claudia, you are our precious baby girl and as ever, so worth it
Posted on: Thu, 18 Sep 2014 11:52:38 +0000
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