It is time to update regarding my sweet grandson, Jaxon. There is - TopicsExpress

It is time to update regarding my sweet grandson, Jaxon. There is still not a diagnosis. His episodes can go from mild to severe....noting there are symptoms daily. At his worst, he looses control of his neck, left arm and hand, torso and both legs. Jaxon and family have gone back to Cincinnati for an appointment with the genetics team to discuss exome sequenging....checking Danna and Davids DNA compared with Jaxons DNA. Please pray for comfort and a miracle. This is the first medical trip that I have not gone with Jax.....I miss them all.

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