Ive been debating about whether or not to post anything, but I - TopicsExpress



          

Ive been debating about whether or not to post anything, but I decided I needed to because I have friends who have been told they have fibromyalgia and that may not be true. Im sitting here right now with my right bicep in spasms, my head hurting, my body jerking, and my pain level at about a 7...which is down from the 9 it has been for the last 24 hours. I was told that I had fibromyalgia in 2008, but that was a lazy diagnosis. I have Hashimotos Disease. An endocrinologist was able to look through my last 6 years of labs and ultrasounds of my thyroid and determine that diagnosis. One simple blood test proved it. It is what CAUSED my hypothyroidism...which I was diagnosed with in 1997. So Ive had it for at least 17 years and not one doctor thought to test for that. It is an autoimmune disease and had I known about it, I couldve been doing things differently and may not be in the shape Im in right now. I wouldnt have had to go to doctor after doctor trying to convince someone that I was NOT crazy and that I didnt want pills, I wanted a diagnosis and treatment! I never wanted to treat the symptoms, I wanted to treat the illness--I just didnt know what it was. I always turned down the pain pills and quick fixes. I am so angry right now because it didnt have to be like this. So what I want to tell my friends who have been told they have fibromyalgia...PLEASE find someone who will dig deeper. Dont take that as the final word unless they have exhausted every autoimmune test! It is important to know what you have so you know how to treat it! There is also a possibility that this autoimmune disease is what is now affecting my brain as well...waiting on the neurologists verdict. Autoimmune is no laughing matter--it is serious and should be taken seriously by your doctor...you just may have to make him understand that. My last bit of advice: dont give up like I did. For the last 15 years, I just resigned myself to the fact that I would just have to deal with all of this. I shouldve been more aggressive...even when they acted like there was nothing wrong with me. Because I was right and now Im going to get better!
Posted on: Tue, 08 Apr 2014 02:43:28 +0000

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