Ive read a lot of different stories and accounts from Duchenne - TopicsExpress

Ive read a lot of different stories and accounts from Duchenne parents and heres mine, not going to wine on, just going to keep it short; Those that are close to me know how the past 5 years have played out, from diagnosis to today. Watching Aston starting to physically slowly deteriorate is crushing. Knowing what the future holds and knowing what is coming is something I simply cannot deal with. I live day to day without ever looking too far into the future. Im afraid and fearful for Ava-Rose and how she will deal with the future. Im fearful for Sarah and how she will deal with it too. All Duchenne parents will know the feeling, that feeling that never leaves, that feeling in the pit of your stomach. Complete fear and dread

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