Just to clear up some questions about TPN. First, my stomach issues have been going on for almost 8 years. More severely the last 3 by far, but that being said Ive had alot of time to try many, many, many things. That includes diet changes, protein shakes, smoothies, liquids, small frequent portions, not eating at all, etc. I am not down to 100 lbs YET, but Im not far off and Id like to keep it that way. TPN is not something I want (nobody accused me of that just wanted to make it clear) but I think its something I may need to get my weight up. Gaining/losing weight doesnt majorly impact how I feel, but I dont wanna get to a point where losing it does make it worse and I dont wanna become too malnourished. Ive avoided it at all costs, but my only options left aside from TPN are major invasive surgeries that arent even guaranteed to work. And for those who dont know TPN is nutrition that goes into the blood but can come with a lot of potential repercussions including damage to your liver or kidneys. Were going to talk to my Dr in boston this coming week and see what they think and probably get it set up in the very near future and it will be on top of daily saline infusions at home, daily j tube feeds, and ivig transfusions every 3 weeks for 3 days. My next set of ivig is this week monday - wednsday. Hoping to get it set up at home next time around (not by monday :( ) so I can smoke my nausea medicine but we found out a nurse has to be around during it and if shes not ok with smoking medicinally then idk what ill do cuz itd suck just as much. Ill keep you guys posted on everything. Take care
Posted on: Sun, 25 Jan 2015 03:32:14 +0000