LYME COMMUNITY: THIS IS SERIOUS!!!! I AM BEYOND FURIOUS!!!!! THIS GOES AGAINST EVERYTHING WE ARE FIGHTING FOR!!!! I couldnt possibly be any more disgusted with some within the Lyme Community who are posting horrible things about FELLOW LYMIES!!!! I CANNOT even believe I am having to post this!!!! **FOREWARNING- IF ANYONE AT ALL POSTS ANYTHING NEGATIVE ABOUT ANY FELLOW LYMIE ON MY PAGE IT WILL BE REPORTED- REMOVED AND I WILL POST PUBLICLY ON MY WALL YOUR NAME AND THAT YOU ARE BULLYING A FELLOW LYMIE(S).. ALSO I WILL REPORT YOU TO FB FOR BULLYING, SLANDERING AND VERBALLY ABUSING A CHRONICALLY ILL PERSON! ALSO, IF POSTED ON A GROUP I WILL REPORT YOU TO FB & THE GROUP ADMINS! IF THE ADMINS OF ANY GROUP THIS TAKES PLACE ON DO NOT REMOVE SUCH POSTS IMMEDIATELY & THE ADMINS DO NOT ADDRESSED THE POST ON THE GEOUP PAGE APPROPRIATELY BY FROM WHICHEVER LYME SUPPORT GROUPS, LYME EVENT GROUPS OR LYME AWARENESS GROUPS I WILL REPORT THE GROUP thought we were better than this!!! Its sad and I cannot believe it but have seen several posts regarding 3 of my close Lyme friends JUDGING and saying cruel things that they do NOT know for certain! HAVE WE LEARNED NOTHING? One recent and very horrible loss via suicide was partially due to LYMIES JUDGING OTHER LYMIES AND POSTING THESE THINGS ON PUBLIC FORUMS, PRIVATE FORUMS AND ON THEIR FB PAGES.... WORSE YET ONE SUCH PERSON IS AN LLMD!!! All I can think is WHY? Are some Lymies jealous that others are getting extra help that they are not... I cannot even find the words to express how WRONG this is on SO MANY LEVELS!! We of all people should know the damage most of us have endured due to Drs, Other Medical Professionals & for many, not me re: most family and a few friends.. I have had many abandon and hurt me bcus they dont understand.. And SO many Lymies have been abandoned by family and friends and weve all been SO DEEPLY HURT BY THIS !!!! Even TRAUMATIZED!!! Now some Lymies are saying this person doesnt deserve help bcus they made bad financial decisions in the past... SO HAVE WE ALL... or that this or that person is living high on the hog and asking for donations and are getting special help...IF A RANDOM LYMIE SAW MY HOME AND THAT WE DO HAVE NICE THINGS THEY COULD SAY THE SAME ABOUT ME! What they dont know is that we would have lost our home if not for family helping by buying our house and renting it to us for less than the payment they are making on it! Or that with 4 of us having Lyme 90% of our income is going to treatment plus family is helping pay for treatment! Should I not get my Daughter a Birthday present? Or our kids Christmas gifts? And Im scared to post what we got my youngest Daughter for her 7th Birthday this coming Sunday bcus its normally VERY expensive But whaf people dont know is that the person who sold it to us sold it at a very reduced price due to our situation and All 3 Sets of her Grandparents paid a lot toward it! So does that mean we dont still need help? HELL NO!!! We are very blessed to have help as I have often said with 4 of us being sick and due to complications of going untreated for so long we have to travel far for treatment as there are not many LLMDs in our area! And it is EXTREMELY EXPENSIVE!!! I had a VERY good job up til 4+ yrs ago and had money in savings but WE ALL KNOW THIS ID A RICH MANS DISEASE!!!! Because we are blessed to have family to help I try to help others not $$ but in any way I can!!! AND WORSE IMPLICATIONS THAT a Lymie is an prescription drug addict!!!! OMG REALLY???? Who with chronic Lyme doesnt suffer terribly with pain? I was on VERY STRONG PAIN MEDICINES due to serious secondary diseases and severe damage cause by 25 yrs of being undiagnosed/misdiagnosed etc and I had to go off of them suddenly due to my primary Dr being suspended to write pain medications while I was in the hospital with Septic Shock.... It is EXTREMELY DANGEROUS TO GO OFF OF A FENTANYL PATCH AND CAN BE FATAL IF STOPPED SUDDENLY IS LIFE THREATENING TO STOP TAKING THEM SUDDENLY... It says it all over the box they come in and the little packages theyre in say the above ALL OVER AND SAYS DANGER, WARNING.. I was desperate to find a Dr to prescribe it and two mos later I still havent even though I dont need them just for pain caused by Lyme but for COMPLETELY LEGITIMATE MEDICAL CONDITIONS supported by MANY TESTS!!! that doesnt include the other class 3 pain med was on I was on due to severity of pain and SO MANY health conditions and diseases other than Lyme... I called all over, asked for help from other Lyme Friends.. But had NO CHOICE to stop them suddenly.. I went into severe and life threatening withdrawals, that of I had not been flown out with my husband and kids to my LLMD in California... I honestly believe that I would have died from withdrawals if not for the help of my LLMDs there doing EVERYTHING they could for me!!!! It messed with my heart complications and disease, I was having TIAs every 25-27 seconds! (TIA- mini strokes, which I get occasionally but NEVER EVER like that!) My blood pressure and pulse was very scary! I was so weak I could barely walk 5 feet without my cane and help, and even 3 steps exhausted EVERY OUNCE OF ENERGY I HAD!!! I never imagined anyone could ever be THAT weak before I went into septic shock June 6th... DOES THAT MEAN IM AN ADDICT??!? HELL NO!!! But due to me being an out of State patient via California law per his license my LLMD couldnt prescribe anything stronger than a pain med used commonly for moderate pain! And I lay her suffering in horrible pain!!! THESE ISSUES AND SIMILAR ARE WHY SO MANY PPL WITH LYME COMMIT SUICIDE!!!! Those of us with Lyme Disease know how bad the horrible pain & suffering Lyme Disease cause and MANY of us have additional health complications made worse by Lyme & Cos and terribly painful damage it causes systemically and neurologically!!!! NOT ONE PERSON WITH Lyme Disease HAS THE SAME EFFECTS, DAMAGE, & COMPLICATIONS AND REACTIONS TO TREATMENT!!! SHAME ON ANY LYMIE DOING THIS!!!! THAT IS SUCH AN UGLY AND DISGUSTING THING TO DO TO A FELLOW LYMIE!!! THIS IS THE SHIT WE ARE FIGHTING FOR AND HAVE BEEN FOR A LONG TIME SO THOSE WHO DONT HAVE LYME WILL NOT JUDGE US AND MAKE ASSUMPTIONS AND ACCUSATIONS THAT NONE OF US KNOWS THE DETAILS OF EACH OTHERS SITUATION OR SAY ANY ONE PERSON DOESNT DESERVE HELP!!!! I CANNOT EVEN BELIEVE I AM HAVING TO POST THIS!!!!!! IT MAKES ME SICK THAT ANYONE PART OF THE LYME COMMUNITY WOULD TEAR ANOTHER LYMIE DOWN LIKE THIS!!! IF YOU ARE PART OF THIS YOU NEED HELP AND SHOULD BE ASHAMED OF YOURSELF AND IF YOU ARE A FRIEND OF MINE ASHAMED TO BE ASSOCIATED WITH YOU PER YOUR ACTIONS, AS THIS GOES AGAINST MY MORALS SO KINDLY REMOVE YOURSELF AS MY FRIEND! OR I WILL!!
Posted on: Sat, 16 Aug 2014 04:01:16 +0000
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