Latest on Lainee! Untitled By Jessica Peters- Jensen — 9 hours ago I had a feeling when the peds intensivist came in this afternoon that something might be up. Actually, I sort of knew before that and Im pretty sure Brian had a sixth-sense way of knowing already this morning. Lainee continued to struggle to take deep breaths throughout the afternoon and evening. The doctor wanted to let us know that he had been watching her closely from a respiratory standpoint and was not necessarily concerned but not necessarily pleased with what he had been seeing. He wanted to prepare us for the possibility that he would need to intervene further again in aiding her breathing. Needless to say, he had to do just that. He changed her mode of intervention from a c-pap machine to a bi-pap which basically performed both functions of the lungs. He also increased the amount of oxygen to 100%. Unfortunately this did not cut it and her stats continued to decline. He again prepared us that he was looking at a couple of things in her blood work and was also preparing to go to the third step of intervening which was to intubate and heavily sedate Lainee. Likewise, if we got to that stage, since she would be sedated, he indicated we would likely switch from an intermittent dialysis (once a day, every day for three or more hours as we had been doing) to continual renal therapy (CRT), which is continual dialysis 24 hours a day. As he spent more and more time in Lainees room watching all the buzzing, humming and beeping machines, I knew it was not going where we wanted it to. Around 8 tonight the intensivist started putting the process in motion and Lainee was intubated. There are no song lyrics or words to describe how awful it is to see your child, any child, in that state. It is purely selfish on my part because I dont want to not hear her personality. But I know this is the best for her right now for how sick she is. She can now battle HUS without having to do all of the fighting herself. She is not in pain right now, she is not agitated, she is able to sleep and she is able to get the best dialysis possible. She is on a continuous drip of a pain medicine to keep her sedated, an antibiotic and a blood pressure medication to keep her blood pressure at a good number. At this point it is hard to determine a timeline with all of this. Prior to todays setback we were expecting dialysis to continue until early next week followed up recovery then some rehab. Now, there is just no way to know how she will respond or bounce back. However, besides the fact that she is not in pain or having to fight so hard, the positive side to this is the CRT. This will allow the nephrology team to continually clean the toxins from her blood instead of cleaning the blood then letting everything fill back up and repeating the process. So from a kidney failure standpoint, this really is the best. While it has been an extremely difficult, emotional night for Brian and I, we again are amazed by all of the prayers, thoughts and well-wishes. We have every hope that we will have our happy, spunky, unconditional-loving, full of life Lainee Bear back with us very soon. Until then, we continue to lift her up in prayer; draw strength from prayer; stand amazed at the skill, compassion and knowledge of a great team of nurses and doctors; count our many blessings and praise a gracious God for all of the love and support from our family, friends and complete strangers. I wish I could respond personally to everyones comments and words in the guest book as well as all of the Facebook messages, texts and calls. These are all so appreciated. Hopefully tomorrow will be a slower day and we can have some time to do that. Thanks again for all of the love and support. It is felt and appreciated and I know it will get us through this. heart 34 people hearted this
Posted on: Thu, 07 Aug 2014 14:47:22 +0000
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