MitoAction will be providing feedback to the U.S. House Energy and Commerce Committees 21st Century Cures Initiative, in which Congress seeks to understand patient perspectives on the state of research and development of treatments for specific diseases. We would like to obtain patient input on several of the questions posed by the Initiative from our patient community and would appreciate your comments, either on Facebook below or by e-mail to [email protected]. The first question we would like feedback on is as follows: What is the financial burden of mitochondrial disease? How would better treatments and cures help save money for your family and the federal government? Attached is a copy of the white paper detailing the 21st Century Cure Initiative. Thanks in advance for your comments! energycommerce.house.gov/sites/republicans.energycommerce.house.gov/files/analysis/21stCenturyCures/20140516PatientsWhitePaper.pdf
Posted on: Fri, 23 May 2014 17:41:33 +0000